WCF are committed to respecting your privacy and will take all reasonable steps to process information about you in accordance with General Data Protection Regulations. The purpose of this privacy policy is to inform you about what information we collect, how we use the information, whether the information is disclosed, and the ways in which we protect your privacy.

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1. Privacy

 

Should we ask you to provide certain information when dealing with us, you can be assured that it will only be used in accordance with this privacy statement. If you have any queries about this privacy policy, please contact us directly at info@wilmsfoundation.org

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How do we collect information

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We obtain personal information about you when you register for our services or patient registry, send an electronic enquiry, make a donation to us, use our telephone helpline or forum, enquire about our activities, complete feedback forms or surveys, or otherwise provide us with personal information. We may also receive information from third parties, such as family or friends.

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Consent for the collection and use of personal information

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By registering to join the WCF or to use our services, and providing us with your personal information, including information about the health and care of yourself, family member or other individual, you consent to the collection and use of this information in accordance with this privacy policy. You can withdraw your consent at any time and for any reason by contacting us with your instructions and your personal information will be deleted from our database.

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What information do we collect about you

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Personal information we may hold could include: name and date of birth, contact information, such as email address, postal address and telephone number, health information about your cancer experience or the experience of a relative, friend or loved one, information you provide regarding your personal situation in order to receive support or information. We also gather information about the use of our website, such as pages most visited and activities of most interest to users. We may use this information to make improvements to our website and to ensure we provide a user-friendly service. This information is anonymous and does not identify individual users of our website.

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What we do with the information we gather

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We will use this information: to help us understand your needs, to provide you with the services, materials or information you have requested, to help us provide you with a better service. We may use the information you provide for various operational purposes including the provision of this information to third parties, unless we have your express direction not to do so. We may contact you by email, or mail. If you do not want us to contact you, please contact us clearly stating that you wish to opt out of any communications from us. We will hold your information for as long as is required to continue to provide you with our services, or until you ask us to delete it, withdraw your consent for us to hold your information, or ‘unsubscribe’, etc.

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Patient registry

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If you register or apply for financial support you will be providing personal information through the registration process and completion of a personal health profile. Only WCF will have access to this personal information and health profile. All data held in the patient registry will be stored on a securely. Information stored in the patient registry may be used in research studies to assess how patients are treated and cared for. This information will eventually be used to help improve cancer services and access to treatments, which will ultimately lead to an improvement in the quality of life of kidney cancer patients.

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Telephone helpline

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If you call our helpline, you may choose to provide details of a personal or medical nature. If you choose to provide personal information, details will be stored on a securely.

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Website forum

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Our knowledge forum is moderated for any commercially sensitive, inappropriate, or defamatory comments, which, if found, will be dealt with in an appropriate manner. The posting of personal information on the knowledge forum means your information is publicly accessible to other WCF forum members. Please take care when posting personal information; we cannot be responsible for the privacy of any identifiable information that you choose to post in our online community.

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Access to your personal information

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You have the right to request a copy of all the personal information that we hold about you under General Data Protection Regulation (for which we may charge a small fee). If you believe any information we are holding about you is incorrect or incomplete, please contact us as soon as possible. We will endeavour to promptly correct any information found to be incorrect.

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You have the right to request deletion of your personal information at any time and for any reason. If you wish to have your personal information removed from our database, or you want to receive a copy of the information that we hold, please contact us directly.

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Security and links

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In accordance with best practice, we have made every effort to safeguard and secure the personal information that we receive in order to prevent unauthorized access or disclosure. If you use standard email to communicate with us, including email links and email forms on this website, please be aware this may be routed via third party internet providers and may not be secure. Our website contains links to websites run by other organizations; we are not responsible for the privacy practices of these organizations and we do not have any control over third party websites. Therefore, we cannot be responsible for the protection and privacy of any information you provide whilst visiting other sites, and you should read their privacy policies carefully.